Medindia » Consumer Health » Health Information » Cleidocranial Dysplasia - Treatment

Cleidocranial Dysplasia / Rubber Man / Marie-Sainton disease / Mutational Dysostosis

Cleidocranial dysplasia - Treatment

RSS Feeds   Text 
There is no specific treatment for the condition. Only the dental condition can be somewhat modified by timely intervention. As the dental problems is most significant; appropriate measures are important. Some of the suggested options include the following:

1. The primary or the milk teeth should always be carefully assessed for presence of decay and if found these must be restored. Corrective surgery of the teeth and repositioning the bones is also recommended.

2. Application of dentures over the unerupted teeth

3. Extraction of teeth as they erupt.

Some dentists do not recommend the removal of primary or supernumerary teeth as it does not necessarily promote eruption of unerupted permanent teeth. Also the permanent teeth may be difficult to extract due to presence of malformed roots.

Cosmetic surgeon or plastic surgeon or orthopedic surgeon also be consulted.


Share it!
Comment & Contribute
Comments should be on the topic and should not be abusive. Comments are normally moderated and are reviewed after they are posted.
* Your comment can be maximum of 2500 characters

Notify me when reply is posted
I agree to the terms and conditions
  
If you have a question about health related issues, you can now post it in our Ask An Expert section on our community website Medwonders.com and get answers from our panel of experts.
Posted by:  sue09  Posted on: 03/01/2009
my son is 12 years old he was born with ccd he wants to play football next year i am not crazy about it but now iam worried about his furture will he be able to get a job with having ccd
right now i can't find any body with theis kind of information please tell me what i am looking forward to when he gets older


Posted by:  c3333(Guest)  Posted on: 11/08/2010
yea he will be fine im 16 and i have a job but it may be hard



Posted by:  angelatmyside(Guest)  Posted on: 07/03/2011
I am 31 years old and a mum.I, too have ccd. I often worried about what I could and couldn't do. Here I am. Don't stop your son from doing the things that he really wants to do. Let him fly and if, only if, catch him if he should fall. I doubt he will fall. I bet all through his life he has had to adapt and by the age of 16 he knows too well what he can and can't do. What we can't do we make up with what we can do. I know it's hard I have seen my mum's tears fall many a time with fear for me but I assure you what doesn't kill you just makes you so much stronger, not just for you but for your son too. xx




Posted by:  asajael(Guest)  Posted on: 12/06/2008
I have CCD. This biggest issue for me is the lack of structure. Therefore my arms are weak and hurt all the time. My back will hurt unbelievable if I stand in one place fore more than 5 minutes. I wish the educated doctors would get educated about this. I am so frustated with the lack of information and what I do find is very under ratedly correct. The biggest problem is not my mouth. This about this: if you were to build a house out of 1"x1"s and take a chuck or two out of it here and there... how long do you think it would last??? Do you really think with the shoulders not being formed correctly that it would not have an effect. Did you have to think about that first? Is there anyone out there who has some common sense on the matter???



Posted by:  guest  Posted on: 08/28/2008
I have CCD and the information on this site is incorrect. To state that one has to have dentures in today's medical advancements is so sad. I am moderator of a yahoo Cleidocranial Dysplasia site and the truth is this is no longer a fact. Myself and my children, plus many others have been successfully treated and have their own their own gorgeous smiles. Making such a broad statement makes people who find out their child has CCD and searching for answer and have no idea what to expect with CCD feel like there is no hope and there is.


Posted by:  guest  Posted on: 12/16/2009
Anita, Could you please let me know, what kind of treatment you have gone through?




X
Related Links
Mandibulofacial Dysostosis
Osteogenesis Imperfecta
Pagets & Jaw Bone Diseases
Fibrous dysplasia of the bone
Citing this Health Article
The information on Medindia is factual, unbiased and authentic. If you find the content useful - PLEASE INCLUDE A LINK TO THIS PAGE.

Highlight the text, right-click, and select “copy”. Paste the link into your website, email, or any other HTML document.

Are you a member of Facebook? Become a fan of Medindia and get breaking news delivered to your Facebook page.