Frequently Asked Questions
1. Which doctors diagnose and treat Marfan syndrome?A team of doctors that includes geneticist, eye specialist, heart specialist, skin specialist and bone specialist are preferably required to diagnose Marfan syndrome, and take steps to treat and prevent complications.
2. What is the life expectancy of Marfan syndrome?
With a team of experts available, the life expectancy of Marfan syndrome has increased to more than 60 years of age. However, when vascular surgery was not available, patients died around the age of 32 years from rupture of the aorta. Some children suffer from severe Marfan syndrome without inheriting the condition, and die before the age of 1 year.
