A distressed couple in Leeds has revealed that both of their children are suffering from a rare genetic disorder that slowly turns their organs into crystals.
Jessica Kemp revealed that her daughters, Emily, 3, and Poppy-Mae, 2, have been diagnosed with cystinosis, a rare genetic disorder that affects just one in 3.5 million.
AdvertisementCystinosis is an incurable condition with just 2,000 patients in the world and as it is a genetic disease, there is a one in four chance that Ms Kemp's children may suffer from the disease.
Ms Kemp said that when Emily was diagnosed with the disease, she was pregnant with Poppy-Mae and knew that she too would be suffering from the condition. "I already knew in my heart that she had it. I was devastated when the doctors confirmed our worst fears - both our little girls had cystinosis", she said.
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