Twenty-year-old Beth Goodier from Stockport is one of just about 1,000 people worldwide who suffers from a rare sleeping disorder called Kleine-Levin syndrome.
Popularly called the 'sleeping beauty' syndrome, Kleine-Levin Syndrome does not have any cure, but doctors say the affected people eventually outgrow it. For Beth, it cannot happen anytime soon. She is keen to move out of her mother's place, but cannot do so for the fear of suffering an episode, which sees her sleep for 22 hours a day for weeks on end.
"I'm at the age now where I would love to move out because I'm ready," she told the BBC. "But I can't because I need my mum's supervision for when I'm ill ... It's really frustrating." Beth first suffered an episode when she was 16 years old.
Beth's mother says that her daughter is in a confused state when she is awake as well if she has suffered an episode. "When she's up, all she does really is, she's either in bed or on the sofa and she'll watch telly, often the same things over and over again as she likes predictability," Janine Goodier said. "On the odd time she's well we don't say any more, 'We'll do that next week.' We do it now when she's well because that might be the only time you get."
Beth spoke to promote KLS Support UK, a charity founded in 2011 by the parents of a teen affected with the syndrome.