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Seven in Ten Patients Surveyed Hadn’t Heard of the Summary Care Record
The most common perceived benefits of the SCR included having medical details safely and consistently in one place and not having to fill out forms or remember what medication they were taking. The latter was particularly important for people with a low health literacy. The most common perceived drawbacks were inappropriate people having access to their records or security breaches.
People with complex health problems or who’d had adverse drug reactions tended to view the SCR positively. People who had been victims of mistaken identity or identity fraud tended to be the most opposed to the SCR.
Most people were not interested in a HealthSpace account with some describing it as ‘pointless’ and ‘irrelevant’. The overwhelming reason for people not wanting a HealthSpace account was a lack of interest in their own health record.
Although most patients wanted to have an SCR, they also wanted to control who had access to it at the point of care. This led the researchers to conclude that it would be more pragmatic and ethical if the mode of consent were to change from ‘opt out’ where anyone with a ‘legitimate relationship’ can view the record, to a ‘consent to view’ model.
Source-BMJ
KAR
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