While palliative care may be available for those with dementia, there are significant barriers to providing or receiving services to relieve the pain, eating difficulties and other symptoms associated with dementia, a new national survey conducted by researchers from Indiana University and the Regenstrief Institute has found.
The survey findings are reported in the Nov. 2010 issue of the
Journal of the American Geriatrics Society.
"Although the general public and many physicians do not associate palliative or hospice care with dementia, dementia is a terminal disease and should be respected as such. Palliative care is needed throughout the illness and can provide those who are unable to communicate their needs with a better quality of life as well as lowering the stress the illness places on caregivers and the entire family," said study first author Alexia M. Torke, M.D., M.S., who is an IU School of Medicine assistant professor of medicine and geriatrics and a Regenstrief Institute investigator. She is also on the faculty of the IU Center for Aging Research and the Fairbanks Center for Clinical Medical Ethics.
Palliative care for those with dementia focuses on relieving symptoms such as pain, shortness of breath, fatigue, nausea, loss of appetite and difficulty sleeping. Hospice care provides palliative care at the final stage of life. Palliative care, which is often provided in the patient's home, can be administered through the course of the disease along with medical treatment and does not hasten death.