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Muscular Dystrophy – An NGO's Crusade to Help the Society

by Thilaka Ravi on March 18, 2010 at 1:07 PM General Health News

Muscular dystrophy (MD) is a group of almost thirty genetic disorders that causes progressive degeneration of our voluntary (or skeletal) muscles causing their weakness. Duchenne Muscular Dystrophy is the most common form of muscular dystrophy that is caused by a recessive sex-linked gene located on the X chromosome and carried only by females. It usually affects boys and gradually as they grow there is weakness of the muscles restricting their movements and eventually affects the muscles involving breathing. It may affect the heart and lung functions too. There is no cure for Muscular Dystrophy but there is ongoing research worldwide to understand the condition better, prevent it and treat the inherited disorder so that the quality of life can be improved for those affected by the different variants of Muscular Dystrophy. It is estimated that every year there are over 1600 children born with this condition in India.

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Medindia spoke to Dr. V. Vishwanathan, DCH, MRCP, Ph. D (Pediatric Neurology) Consultant Pediatric Neurologist and Founder President, Muscular Dystrophy Association India, a project that has crossed cultures and borders in research and facilities for improving the quality of life for children affected by Muscular Dystrophy.

The NGO that he founded raises the level of public awareness on Muscular Dystrophy. MDAI has been instrumental in starting for the first time in India, a school exclusively for kids affected with MD. MDAI is one of the centers listed and recognized by the Cooperative International Neuromuscular Research Group (CINRG) — the global program on Duchenne Muscular Dystrophy.

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MukulBhatia(Guest)

09/13/2011

my nephew is suffering from muscular dystrophy since birth , how you can I contact with you. I want address of your Indian help centers and their address.

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san01666(Guest)

03/13/2011

my nephew is suffering from mascular dystrophy since birth , how you can us.

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Ramya.M

07/28/2010

what type of ligands binds to dystrophin protein. drugs are identified by this disease, how many peoples are affected by this disease

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abcs44(Guest)

06/09/2010

please expand your help hand to banglaore in kanrataka because my 2 sons have this problem and advise me to what to do next

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Muscular Dystrophy – An NGO's Crusade to Help the Society

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