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Hidden Children With Rare, Fatal Aging Disorder Found in Global Campaign
The findings are being shared at a Centers for Disease Control national conference on health communications.
As of October 2009, only 54 children living in 30 countries had been identified with Progeria, a disease affecting less than .01% of the world's population. However, experts estimated that another 150 children with Progeria were alive elsewhere in the world, but had not yet been located or identified.
"At the launch of the campaign, we thought that finding even one child would make the campaign a success," said Audrey Gordon, Executive Director and President of The Progeria Research Foundation (PRF). "Each additional child we identify with Progeria allows us to provide him or her with unique and essential medical services and care, and significantly furthers medical research to develop treatments and a cure."
"These results have exceeded our greatest expectations," Ms. Gordon said. PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria.
Since all children with Progeria eventually die from the same heart disease that affects millions of older people, finding a cure for Progeria may provide clues to preventing or treating heart disease, as well as other conditions associated with the natural aging process.
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