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Children too Suffer from Multiple Sclerosis, but Treatment Mechanism Not in Place, Say UK Experts
The chronic condition, traditionally associated with adults, affects the central nervous system creating symptoms of fatigue, loss of mobility and eyesight, and can result in long-term disability.
It took doctors four years to diagnose that the 16-year-old Karen Pumpuni of South London was suffering from MS.
The girl was completely in the dark about the disease, which affects twice as many women as men. "I had heard about MS but I didn't know the symptoms like you would if it was cancer," she said. "I didn't know if it was something severe or something which could be easily treated like asthma." Two years on from her diagnosis she still feels isolated by the disease. She admits: "I feel like nobody understands what I go through."
The MS Society is hoping that its first ever conference on childhood MS, being held Wednesday in London, will go someway to help raise the public and health profession's understanding of the life that Karen and other young people like her face. The charity hopes that the conference will be the first step in the UK towards recognition of the condition in children, taking the lead from US and Canada.
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