Medindia

X

Pulmonary Fibrosis Foundation Launches New Web Site for IPF Community

Tuesday, April 13, 2010 General News J E 4
Advertisement


CHICAGO, April 13 The Pulmonary Fibrosis Foundation (PFF) today announced that it has launched a completely redesigned Web site aimed at providing a unique online environment for patients and families living with idiopathic pulmonary fibrosis, or IPF. The new Web page, www.pulmonaryfibrosis.org, highlights the PFF's commitment to improving the availability of information and resources for IPF patients and families, while helping them make informed choices about managing their disease.

The new Web page also highlights a variety of online services to improve communication between patients, including online IPF support groups, and links to the PFF's Facebook, YouTube, and Twitter pages, each of which have shown rapid membership growth.

"While we strive to establish personal relationships with our members, we know that an increasing number of patients and their families rely on the Internet to obtain information about their condition," said Dan Rose, MD, President of the PFF. "Our new Web page is designed to be a complete online resource for anyone interested in learning more about IPF, while enhancing our ability to personally connect with this community."

The new Web page has been improved to help users easily navigate through a variety of educational topics, while accessing IPF-specific resources important to them. Resources include a national listing of face-to-face support groups, lung transplant information, resources for caregivers, medical centers that specialize in IPF treatment and research, resources for financial assistance and counseling services, and access to the PFF's quarterly Breathe Bulletin newsletter.

The PFF also highlights individuals who are living with IPF through its Profiles section, where those living with IPF have posted their stories with pictures and/or videos. The Latest News section is updated in real time with coverage of news and information that is important to our members and is available through an RSS feed.

"Since we were founded in 2000, we have established personal, caring relationships with thousands of patients and their loved ones", said Leanne Storch, Executive Director of the PFF. "We are committed to helping patients over the phone, through the Web page, or in person. No matter what the individual circumstances, or what challenges an IPF patient faces, we are here to help. Most of our staff are patients or caregivers themselves, and they are working with patients every day to assist them in understanding their disease and empowering them to learn more about IPF."

Anyone is able to become a member of the Pulmonary Fibrosis Foundation free of charge by visiting www.pulmonaryfibrosis.org/join. Members receive a complimentary subscription to our quarterly Breathe Bulletin newsletter, email alerts on important IPF news, and online invitations to support groups, webinars, and fundraising events around the United States.

About Jennifer Ross Design

The Pulmonary Fibrosis Foundation Web site was designed by Jennifer Ross Design LLC , a New York City design studio specializing in web design and branding for media companies, e-commerce and small business. For more information please visit (http://jenniferrossdesign.com)

About the Pulmonary Fibrosis Foundation

The Pulmonary Fibrosis Foundation is 501©(3) organization, whose mission is to find a cure for idiopathic pulmonary fibrosis (IPF) by funding research, advocating for IPF issues, promoting disease awareness, and providing a compassionate environment for supporting patients and their loved ones. We achieve these goals by promoting new research through increased funding; by representing the needs of our constituents in Washington DC through national advocacy; and by developing caring relationships with patients and their families throughout the course of their disease. To date the PFF has funded more than $2.7 million in IPF research. For more information, please visit www.pulmonaryfibrosis.org, email us at info@pulmonaryfibrosis.org, or call 888-PFF-ORG1 (888) 733-6741.

SOURCE The Pulmonary Fibrosis Foundation
Advertisement


Advertisement

You May Also Like

Advertisement
View All

Post your Comments

Comments should be on the topic and should not be abusive. The editorial team reserves the right to review and moderate the comments posted on the site.
User Avatar
* Your comment can be maximum of 2500 characters
I agree to the terms and conditions
s
FDA Class III Category Creates Hurdles for Percuta...
S
New Database Provides Online Access to Research an...