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Haynali, founder of the Internet support group Caregivers ArmyOrganization, at http://www.caregiversarmy.org, and advocate for Alzheimer'sand caregivers all over the world, has fought to generate federal support forAlzheimer's research and to create a support system for caregivers through therelease of her book "Poetry From The Heart By An Alzheimer's Caregiver."
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The National Institute of Health has cited evidence indicating that thenumbers of those age 65 or older with Alzheimer's will increase to 5.1 millionin 2010. Those numbers will continue to increase unless ways to delay orprevent the disease are developed.
Knowing personally the realities of Alzheimer's, Haynali writes to assureothers that they are not alone, to impress upon others that the onset of thedisease can happen to anyone at any time, and to persuade readers to educatethemselves now and join the movement to find a cure.
"Poetry From The Heart By An Alzheimer's Caregiver" was compiled using adaily journal that Haynali kept as she struggled through the hardship ofseeing her husband fall into the depths of his illness. Haynali's poems are atestament to her unwavering commitment, love and ability to give a voice tothose who can no longer speak for themselves. In "Alzheimer Patient's Prayer,"she writes: "Pray for me, I was once like you/ Be kind and loving to me,that's how I would/ have treated you. Remember I was once someone's parent orspouse, I had a life and a dream for the future."
Haynali lived with and cared for her ailing husband for 10 years before hepassed, and through those 10 years provided for him the best she could,despite the stress and isolation that she endured on a daily basis. However,Carolyn picked herself up and decided to create a network for caregivers thatprepared them for what lay ahead and provided resources to help them on theirjourney. "Poetry From The Heart By An Alzheimer's Caregiver" is one of thosecontributions.
Carolyn A. Haynali's mission is to help other caregivers that are hurtinglike she was. She has written articles for newspapers and magazines, and hasbeen interviewed on local TV and radio stations. She has also coordinated apetition for more research to find a cure for Alzheimer's disease, andpresented over 20,500 signatures to the Congressional Alzheimer's Task Forcein Washington, D.C. on Sept. 21, 2000. Her late husband, Chuck, and she havetwo children, three grandchildren, and three great-grandchildren. She was therecipient of the Caregivers Award and has been inducted into the SeniorCitizens Hall of Fame for the state of Ohio and her book can be found in theRonald Reagan Memorial Library. Her poetry has appeared in many other books.
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