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Parents Host Golf Tournament to Fund Cure for Disease That Claimed Daughter's Life

Friday, October 10, 2008 General News J E 4
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Lisa Sandler Spaeth Memorial Golf Tournament to be held at Woodmont Country Club on Oct. 14



ROCKVILLE, Md., Oct. 9 /PRNewswire-USNewswire/ -- Dr. Jerome Sandler and his wife, Froma, are still dealing with the sadness of losing their beautiful daughter last year to a disease of unknown origin that has no cure. Lisa died of pulmonary fibrosis (PF), which claims 40,000 lives each year. The Sandlers have turned their grief into action as they host the first Lisa Sandler Spaeth Memorial Golf Tournament on October 14th at Woodmont Country Club in Rockville to raise funds to help the search for a cure. Proceeds will go to the Coalition for Pulmonary Fibrosis (CPF) and will be awarded to support cutting-edge research in the field.



Lisa Sandler Spaeth, 44, suffered from pulmonary fibrosis (PF), a disease that scars the lungs and suffocates its victims. There is no FDA approved treatment and no cure. Her parents not only are hosting this first-time fundraising event, they also recently joined the CPF on Capitol Hill to meet with Members of Congress regarding the recently introduced Pulmonary Fibrosis Research Enhancement Act (H.R. 6567) and share their family's experience with the disease.



"We miss our daughter so very much and we want to try and make sure other families won't have to go through the tragedy we've faced," said Froma Sandler, Lisa's mother. "By supporting the CPF and pulmonary fibrosis research, we can honor Lisa's memory while searching for a cure."



The special event will be hosted by the Sandlers and Lisa's siblings to pay tribute to Lisa and to bring awareness and funding to the disease that claimed her life so quickly, forcing her to leave behind her family.



"We are so grateful to Dr. and Mrs. Sandler for the selflessness of their efforts. They are helping to bring much needed funding and awareness to a disease that has claimed too many lives and threatens thousands more. With their help, we can find desperately needed treatments," said Mishka Michon, Chief Executive Officer of the Coalition for Pulmonary Fibrosis.



Because of the community response and support of the Coalition for Pulmonary Fibrosis and the Sandler family, the golf tournament tee times have sold out. Dinner tickets are still available for $125. The event will also include a live auction.



The event at this elegant club will include 18 holes of golf, lunch, dinner, a live auction and special prizes. A key researcher in PF will be present to share information and answer questions about the disease, as will a representative of the CPF. For further information or sponsorship, please contact Dr. Jerome and Froma Sandler at (301) 469-7687.



Background on IPF

About Idiopathic Pulmonary Fibrosis (IPF) or Pulmonary Fibrosis (PF)

IPF is a lung disorder characterized by a progressive scarring -- known as fibrosis -- and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from IPF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. IPF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagnosis.



About the Coalition for Pulmonary Fibrosis

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for idiopathic pulmonary fibrosis (IPF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure pulmonary fibrosis; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of IPF issues; and works to improve awareness of IPF in the medical community as well as the general public. The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. With more than 13,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with pulmonary fibrosis. For more information please visit http://www.coalitionforpf.org or call (888) 222-8541.



SOURCE Coalition for Pulmonary Fibrosis
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