WASHINGTON, May 23, 2011 /PRNewswire-USNewswire/ -- To better serve the nearly 30 million Americans who have rare diseases, the National Organization for Rare Disorders (NORD) has launched a completely redesigned website with new features to promote global networking, awareness, and advocacy on behalf of the rare disease patient community.
The new site, at www.rarediseases.org, was designed with particular emphasis on enhancing NORD's ability to assist and partner with:
SOURCE National Organization for Rare Disorders (NORD)
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The new site, at www.rarediseases.org, was designed with particular emphasis on enhancing NORD's ability to assist and partner with:
- rare disease patient organizations
- newly diagnosed patients and their families
- medical researchers developing diagnostics and treatments for rare diseases
- medical professionals
- teachers, social workers, and others assisting patients and their families
- the international rare disease community
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- a Legislative Action Center with up-to-the-minute information on the status of NORD's current advocacy priorities and how to get involved
- a resource center for those wishing to start a new patient organization or grow an existing one
- free overviews of rare diseases in patient-friendly language with links to patient organizations for more in-depth information
- global networking opportunities through NORD's partnership with the European Organization for Rare Diseases
- news tailored to the specific interests of patients, patient organizations, medical professionals, researchers, and industry
SOURCE National Organization for Rare Disorders (NORD)