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New Website Promotes Rare Disease Patient Networking

Monday, May 23, 2011 General News
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WASHINGTON, May 23, 2011 /PRNewswire-USNewswire/ -- To better serve the nearly 30 million Americans who have rare diseases, the National Organization for Rare Disorders (NORD) has launched a completely redesigned website with new features to promote global networking, awareness, and advocacy on behalf of the rare disease patient community. 
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The new site, at www.rarediseases.org, was designed with particular emphasis on enhancing NORD's ability to assist and partner with:

  • rare disease patient organizations
  • newly diagnosed patients and their families
  • medical researchers developing diagnostics and treatments for rare diseases
  • medical professionals
  • teachers, social workers, and others assisting patients and their families
  • the international rare disease community
NORD's web redesign will be a phased process, with many new features present at this time and others planned for the future.  New features launched at this time include:
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  • a Legislative Action Center with up-to-the-minute information on the status of NORD's current advocacy priorities and how to get involved
  • a resource center for those wishing to start a new patient organization or grow an existing one
  • free overviews of rare diseases in patient-friendly language with links to patient organizations for more in-depth information
  • global networking opportunities through NORD's partnership with the European Organization for Rare Diseases
  • news tailored to the specific interests of patients, patient organizations, medical professionals, researchers, and industry
Established in 1983, NORD is a nonprofit organization that represents all Americans affected by rare diseases.  Any disease affecting fewer than 200,000 Americans is considered rare in the U.S.

SOURCE National Organization for Rare Disorders (NORD)

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