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The National Stomp Out Sickle Cell Walk 2008 is being coordinated by acollaboration of institutions, community services and Sickle Cell AwarenessOrganizations:
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Children's National Medical Center (CNMC) - Center for Cancer and BloodDisorders, DC DOH/ CHA/ Sickle Cell Program, District of Columbia GreaterAccess to Pediatric Sickle Cell Services - Howard University, Faces of OurChildren, Inc., Georgetown University Hospital Div. of Ped.Hematology/Oncology, Howard University Center for Sickle Cell Disease, HowardUniversity Hospital, Lauren D. Beck Sickle Cell Foundation, Inc., Sickle CellAssociation of the National Capital Area, Inc.
Sickle Cell Disease, often called Sickle Cell Anemia or just "sicklecell," is an inherited condition that affects hemoglobin within the red bloodcells. The presence of sickle hemoglobin (HbS) leads to the formation ofcrescent or sickle-shaped cells that are rigid and sticky and which tend toocclude (clog or close up) small blood vessels. Depending on the organinvolved, this occlusion leads to episodes of pain, death of tissue andserious complications.
While currently there is no cure for Sickle Cell Disease there are avariety of options available. One of our goals for the walk is to get as muchinformation and education about the Sickle Cell trait. Sickle Cell Diseasedoes not just affect African Americans; it affects different races and ethnicgroups.
While current sponsors Commerce Bank, SchemeMag, YMCA Potomac Overlook,East Hill Video, 3VDesign Group, The Power Mag and KRJ Consulting, Children'sAdvocacy Institute and CNMC have been very supportive, more sponsors areneeded to raise awareness. The goal is to have 10,000 people walking acrossthe country and raise $10 million collectively to help with support groups andresearch.
For more information about these walks, to donate or to sponsor or sign upfor your virtual walk, please join us at http://www.soswalk.org. Everydonation, walker and volunteer is needed. Walkers are encouraged to takecontrol of their fundraising effort by creating their own online fundraisingpage, and joining us on LinkedIn as well as Facebook. You may also contact theNational Stomp Out Sickle Cell Walk POC: Bequiessence Consulting LLC, by emailat [email protected] or by phone at 301-292-3682.
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SOURCE National Stomp Out Sickle Cell Walk