Lupus Foundation of America Launches Website Message Boards to Connect People With Lupus
People with lupus often suffer from severe and disabling joint pain, overwhelming fatigue, and organ damage, which can be disabling and isolating. The LFA message boards will be a valuable resource for individuals who are not able to attend a support group meeting or education program, particularly those who live in rural areas or where no local resource is available. In addition, message board users can anonymously seek help without fear of revealing sensitive medical information to friends or employers.
Initial discussion topics include Recently Diagnosed with Lupus, Lupus Treatments, Men with Lupus, Teens with Lupus, and Coping with Lupus. There also is a category for discussing topics featured on LFA Webchats. Additional topics will be added based on feedback from message board participants.
Individuals visiting the LFA message boards can view what others have posted, post their own questions, or share comments about topics of interest. The message boards will serve to create an online community where people living with lupus, their relatives and friends, caregivers, and information seekers can meet, bond together, share ideas, and build hope.
Lupus is a chronic autoimmune disease which can be destructive to any major organ or tissue in the body. The disease can be very unpredictable and is potentially fatal, yet no satisfactory treatment or a cure exists. Approximately 1.5 million Americans and at least five million people worldwide have a form of lupus. Lupus strikes mostly females ages 15-44, although females and males of all ages can develop lupus.
The Lupus Foundation of America is the nation's leading nonprofit voluntary health organization dedicated to finding the cause of and cure for lupus and providing support, services, and hope to all people affected by lupus. The LFA and its nationwide network of nearly 300 chapters and support groups conduct programs of research, education, and advocacy.
SOURCE Lupus Foundation of America
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