Going Social to Spread the Word in 2011
DANVERS, Mass., May 31, 2011 /PRNewswire-USNewswire/ -- June is Scleroderma Awareness Month, and you can become an advocate for the Scleroderma Foundation by raising awareness and teaching others about this chronic,
Teaming up with the Scleroderma Foundation in 2011 to spread awareness in the Twitterverse is ambassador and actress Kellie Martin ("Christy" and "ER"). Kellie will share important facts about scleroderma and how people can get involved to help find a cure for the disease. To receive Twitter updates from Kellie, follow @Kellie_Martin.
"Through the years, Kellie has showed her continued support for scleroderma patients and their families, as well as the Foundation. We are very excited to have her online support this year," said Robert J. Riggs, the Scleroderma Foundation CEO. "We hope we can reach a greater audience with her help as we work diligently to find the cause and cure of the disease."
In June, Scleroderma Foundation chapters and support groups will host "Stepping Out to Cure Scleroderma" walk-a-thons across the country to raise money for research, education and support programs. There are 53 events scheduled this year. In 2010, 44 walk-a-thons were held and raised more than $1.1 million for the Foundation.
Eight teams from Actelion Pharmaceuticals US, Inc., also will take part in the Escape from Alcatraz triathlon Sunday, June 5, in San Francisco. Twenty-four athletes will swim, bike and run to spread awareness about scleroderma and pulmonary arterial hypertension (PAH), one of the secondary conditions that many scleroderma patients also have.
There are many ways to get involved during Scleroderma Awareness Month. Here's how people can help:
For more information about scleroderma and Scleroderma Awareness Month, visit www.scleroderma.org.
Scleroderma is a chronic, often progressive, autoimmune disease in which the immune system attacks its own body.
Scleroderma means "hard skin." It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract. As scarring, or sclerosis, of these organs and organ systems progress, they work less effectively, and can lead to organ failure and death.
Some medications and treatments can help with certain symptoms, but there is no cure for scleroderma. The disease affects about 300,000 people across the U.S. In comparison, the same number of people are affected by multiple sclerosis.
About the Scleroderma Foundation
The Scleroderma Foundation is the national organization for people with scleroderma, their families and friends. It was formed Jan. 1, 1998, by a merger between the United Scleroderma Foundation and the Scleroderma Federation.
Today, the Scleroderma Foundation is headquartered in Danvers, Mass. It is a 501(c)(3) non-profit organization dedicated to serving the interests of people living with scleroderma. The Foundation has a network of 23 chapters and 145 support groups committed to carrying out the three-fold mission of support, education and research. The Scleroderma Foundation funds $1 million in new grants each year to find the cause and cure for scleroderma.
For more information about the Scleroderma Foundation, visit www.scleroderma.org or call (800) 722-HOPE
SOURCE Scleroderma Foundation
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