Advertisement
Patients who suffer from IPF, a deadly lung disease that causesprogressive scarring in the lungs, are often in desperate need of theinformation and support offered by special free seminars. However, many areprevented from accessing these unique opportunities because of their need forcontinuous oxygen supplementation and the burdens of traveling with theircritical equipment.
Advertisement
Patients, caregivers and families can now "virtually" attend the CPF'supcoming seminar with the University of Washington Medical Center (Seattle,Wash.), one of leading specialty centers for the treatment and study ofpulmonary fibrosis, by accessing the live webcast of the event live via theInternet. It will also be archived for later playback for patients and theirfamilies who cannot attend the event in person.
The live audio Webcast will be available for patients and families livingwith IPF, caregivers, members of the public, and members of the media.
The "Living with IPF" patient seminar will be held Saturday, Oct. 13, 2007from 9:30 A.M. - 4:00 P.M. Pacific Daylight Time, and can be heard online byvisiting: http://www.videonewswire.com/event.asp?id=42881
The seminar will address IPF diagnosis, current standards of care, lungtransplantation, oxygen management and pulmonary rehabilitation, lifemanagement issues, and resources and support services available for IPFpatients and their families.
The CPF is unable to provide technical support for the event's Webcast.Technical Support is only available by email through Multivu at:[email protected].
Minimum Computer Requirements to listen to broadcast:
The Windows Media Player software, downloadable free fromhttp://www.microsoft.com/windows/windowsmedia/default.aspx and at least a56Kbps connection to the Internet. If you experience problems listening to theWebcast, send an E-mail to: [email protected].
For those who would like to attend the meeting in person, the physicallocation is:
For more information, visit http://www.coalitionforpf.org or call 1-888-222-8541.
About Idiopathic Pulmonary Fibrosis (IPF)
IPF is a lung disorder characterized by a progressive scarring - known asfibrosis -- and deterioration of the lungs, which slowly robs its victims oftheir ability to breathe. Approximately 128,000 Americans suffer from IPF, andthere is currently no known cause or cure. An estimated 48,000 new cases arediagnosed each year. IPF is difficult to diagnose and an estimated two-thirdsof patients die within five years of diagnosis.
About the Coalition for Pulmonary Fibrosis
The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofitorganization, founded in 2001 to accelerate research efforts leading to a curefor idiopathic pulmonary fibrosis (IPF), while educating, supporting, andadvocating for the community of patients, families, and medical professionalsfighting this disease. The CPF funds promising research into new approaches totreat and cure pulmonary fibrosis; provides patients and families withcomprehensive education materials, resources, and hope; serves as a voice fornational advocacy of IPF issues; and works to improve awareness of IPF in themedical community as well as the general public. The CPF's nonprofit partnersinclude many of the most respected medical centers and healthcareorganizations in the U.S. With more than 14,000 members nationwide, the CPF isthe largest nonprofit organization in the U.S. dedicated to advocating forthose with pulmona
